Things that suck about my disability

Yesterday I had gotten what started out as a sinus headache, that slowly turned into a migraine.  All of a sudden, I had the urge to poop, before I knew it poop was up my back.  I had to get my PCA to cut one of my favorite shirt off my body, so I wouldn’t get poop in my hair.  I had to throw my pants away.  Moments like this are the reason why I don’t like spending a lot of money on clothes.  I hate those kinds of days.   

Advertisements

Three times the charm

Today One of my four points broke on my seatbelt, so I attempted to get a script from the doctor. By the way when the nurse from hell answered I knew it was going to be a bitch getting the script I need it. She kept arguing about the order in which things had to be there and I told her the wheelchair company said the opposite. I would like to point out this always happens with this particular nurse. They are the nurses and Dr. H is ood about getting Scripps but this nurse is a raging bitch. When I attempted to call a second time the same nurse answered, so I hung up and tried again. The third nurse was completely understanding and sympathetic about my dilemma.

Sometimes I think my life would be easier if I had a penis

The things you have to go through when you’re a non-ambulatory quadriplegic. I needed to get this urine test for my doctor. I did not want to do the usual method of having a straight Cath done at the hospital, because evidently Hamot hospital doesn’t know the correct location to put the catheter. In the past my private area will be sensitive and sore for a couple of weeks. I had to call around to all of these different Laboratories and not an easy task. Try to explain to a lady why a 37 year old needs a cath beg for an infant.

Do Not Have These Conversations…

I feel that one biggest problems in dealing with personal caregivers, you can never be honest about how you feel.  If you tell your personal caregiver they are not your friend, they act all wounded, but when you act as their friend you must have an attachment disorder.  Don’t ever tell your caregiver that you get lonely, because they will look at you like a sexual criminal.   

Whomever controls your finances, controls you

Whomever controls your finances, controls you. The best person to manage your money Is you, but that sometimes cannot happen. The person who controls your finances, should never be your caretaker. Caretakers should never have that much power over their clients. I know it is hard to think of your caretaker as a temporary employee, but that is exactly what they are. I have heard horror stories about Mecca managing people’s money and stealing it. If you use an agency like this, always get a receipt and demand to see a paper trail of your expenses. You have the right to know where your money is going.